晨间信号Morning Signal
《男性健康》 2026年10月刊 · 中文解读

疼痛与偏见:英国黑人男性与镰状细胞病的抗争

PAIN AND PREJUDICE · Nadine White
约 20 分钟features在小程序里点播,20 到 60 分钟做好
这篇讲什么
镰状细胞病是英国增长最快的遗传病,主要影响黑人群体,但许多男性患者表示自己在就医时被轻视、被刻板印象化,甚至被要求默默忍受痛苦。伦敦患者卡尔文·坎贝尔形容日常疼痛如同被棒球棍击碎全身骨骼,而2021年议会报告《无人倾听》记录了止痛延迟、种族偏见和患者被当作"求药者"的现象。文章还讲述了多名黑人男性因救治延误而死亡的案例,并探讨了男子气概观念、血液交换治疗以及基因疗法等新希望。
原文开头
Sickle cell disease is the UK’s fastest-growing genetic disorder, predominantly affecting Britain’s Black population. Yet men living with it say they are routinely dismissed, stereotyped and expected to suffer in silence. Nadine White investigates the fight for progress and the pathways offering hope Every evening, Calvin Campbell goes to bed in pain, sleeps in pain and wakes in the night because of pain. On a good night, he might manage four hours of interrupted sleep. Not that the days are any better. Even as he’s describing his experience of living with severe sickle cell disease, pain is sweeping through his body. …
摘自《男性健康》(Men's Health)2026年10月刊,Nadine White。仅引用开头一小段供了解文章,版权归原刊所有,全文请阅读原刊。
晨间信号小程序码
微信扫码,在小程序里听完整版
不用登录先听一篇 · 或在微信搜索小程序 晨间信号
同期其他文章